Phantom Pain

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This topic contains 8 replies, has 6 voices, and was last updated by Avatar of Ali France Ali France 4 years, 10 months ago.

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  • November 14, 2012 at 4:12 am #67
    Avatar of Ali France
    Ali France
    Editor

    If you had phantom pain prior to osseo, do you still have it? Has it reduced or increased? I had tolerable phantom pain, to at times extreme pain, prior to my 1st stage surgery and I have found that the phantom pain has returned to its previous levels. Has anyone experienced any changes after second stage?

    November 14, 2012 at 10:16 am #70
    Avatar of Daniel Beddall
    Daniel Beddall
    Subscriber

    I never had Phantom Pain, more so Phantom feeling. Before my stage 1 I had sensations, a mild yet intense pins and needle feeling in my toes moving and by flexing the muscles in my upper leg I could feel as my leg would swing side to side when i sitting on a chair.

    Now post Op , the sensations are still there but up higher.

    November 14, 2012 at 12:42 pm #71
    Avatar of David Chapman
    David Chapman
    Subscriber

    I’m like Daniel. I have phantom sensation, very irregular pain. Since osseo sensation of my foot feels closer to the end of my stump where previously it felt like my foot was about the normal distance away.

    November 14, 2012 at 1:00 pm #72
    Avatar of Damien Allen
    Damien Allen
    Subscriber

    I have phantom sensation at times and the odd nerve strike… we all know what that feels like. After each operation it did increase a little and then settle again. After a big afternoon / night on my leg phantom pains and sensation really kicked in for about 2 weeks but finally settling down. I find I get most at night when I am settled.

    November 16, 2012 at 7:26 am #74
    Avatar of william brownlie
    william brownlie
    Subscriber

    phantom pains i could tell you some stories,  but here is a tip my wife suggested to me. magnets,, i smashed up an old speaker, the magnet in the back of it is about 60mm dia, i put it in a small sock and put them in a stump sock and pulled it on,,,, amazing.  i would wake up through the night with those annoying  burning, pins and needles phantom pains and put on the magnet. the magnet lives on a hook above my bed

    December 2, 2012 at 8:29 pm #100
    Avatar of Iain McGregor
    Iain McGregor
    Subscriber

    I never got phantom pain after my accident. I went straight from amputation to the implant and they prescribed a concoction of drugs for pain relief and for phantom pains but didn’t require any of them after a couple of weeks. Still no pain but get the odd sensation of a ping in the calf muscle or foot. Definitely nothing to be concerned about. Later in the evenings I sometimes get some pins & needle sensation if I sit in one place for too long. I’m Dairy Farming and got back to full time in cowshed, milking, riding motorbike, setting electric fences, driving tractor etc 10wks after the leg was fitted. I was off crutches after 3 & half wks. Not one infection or problem medically but had to replace the end bit with the sheer pins as the propella screw was coming loose. All sorted now. Munjed and the Team are all fantastic with their personal touch and keep in regular contact. I’ve had a dream run and sometimes forget I’ve lost a leg. One of the guys I spoke to who got cronic phantom pain before-hand said after the operation that the Lyrica pills sorted it out no problem.

    December 7, 2012 at 8:37 am #117
    Avatar of Ali France
    Ali France
    Editor

    Thanks for all your responses and suggestions. Its an ongoing issue for me. I am trying everything! Cheers Ali

    January 15, 2013 at 11:02 am #142
    Avatar of Ali France
    Ali France
    Editor

    Hi all,

    I have just had the 2nd stage surgery and I have to say the leg feels great, the surgery was a breeze and I am very excited about the prospect of walking…I take my first steps today. BUT….

    The phantom pain goes on. I think my phantom sensations have actually increased since the first surgery and been quite full on after the second. I’ve also had increased phantom pain…although I had a lot of phantom pain before the surgeries so its hard to tell.

    They did say that osseo is no cure for phantom pain but for some it improves a lot and for others it totally goes away. We will see what happens when I am walking. Perhaps things will improve.

    Cheers, Ali

    September 19, 2013 at 4:26 pm #187
    Avatar of Ali France
    Ali France
    Editor

    An update. My phantom pain is as painful as it was prior to this surgery, its still very unpredictable and ever changing. I don’t think it will ever be any different for me and I am beginning to accept it, which is difficult. When I first had this op I think I felt that it had got a bit better but I think I was so over the moon to be walking, the feedback from the new leg must of had some impact but I definately felt that a few months later it just all returned. I have spoken to other osseo patients who have had the same experience.

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