ILP – Sydney

This topic contains 13 replies, has 5 voices, and was last updated by Avatar of Ali France Ali France 5 years, 10 months ago.

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  • November 7, 2012 at 3:44 am #42
    Avatar of Ali France
    Ali France
    Editor

    Leg amputees who want an alternative to the traditional suction socket prosthesis, and to be able walk again without pain, skin irritations and poorly fitting sockets, are very welcome to ask questions of us folk who are going through or have gone through Integral Leg Prosthesis (ILP) surgery. We also welcome other leg amputees who have experience of other systems to contribute.

    Over the past 18 months, nearly 30 above knee and bilateral amputees have travelled from across the world to Sydney to have integral leg prosthethis’ surgically fitted under the expertise of Dr Al Muderis.

    Most of these people are now, connecting their prosthesis when they get up in the morning directly to their femur and walking all day without even a thought of their prosthesis until they take it off before bed at night. They are able to walk all day, unaided and without pain or disscomfort. They feel the ground, most walk without any sign of a limp and they all feel they have dramatically improved their quality of life. This has been an amazing life changing exprerience for all the patients involved.

    But the process is intense, at times painful and requires commitment, particularly in regard to infection control. BUT, from my own personal experience, its going to be worth it.

    December 4, 2012 at 9:29 am #112
    Avatar of JR
    JR
    Subscriber

    I’m a bilateral AK/KD amputee.  Would I need my KD side to be revised if I were to get OI?

    December 4, 2012 at 10:48 pm #113
    Avatar of Damien Allen
    Damien Allen
    Subscriber

    Hey JR, with OI you need to account for about 40mm sticking out, plus some more with the adapter to connect the knee. Hence the knee be quite low down and doubt this would work well. With OI you weight bear up the bone so there is no real benefit of KD over AK. The setup becomes an extension of your skeletal structure. If anything with AK OI you can get a rotator added to setup which is handy from what I have seen. Best to contact the OI doctors or prosthetist with OI experience via email and ask them.

    December 6, 2012 at 7:05 pm #114
    Avatar of JR
    JR
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    Thanks, Damien. I would definetly get my KD revised if it meant no more d@mn socket. I emailed an ITAP doctor about bilaterals and OI and he said it’s not feasible yet for bilaterals. I see in the pic of the home page here that a bilat got it done. Is that ILP? How are you getting on with yours? Cheers.

    December 6, 2012 at 11:04 pm #115
    Avatar of Damien Allen
    Damien Allen
    Subscriber

    Hey JR, it may be better to have one OI AK and one KD, who knows really… a personal decision. I know one double AK and the one in the picture is a second for the ILP system in Australia. Until a KD gets it done and posts there own personal view it is an open field on that :) Maybe you can be a first!

     

    December 7, 2012 at 8:34 am #116
    Avatar of Ali France
    Ali France
    Editor

    Hi JR, welcome to the site. Jaime is the second bilateral amputee to have ILP in Australia (he’s the lovely gentleman in the picture with me on the front page). He is a member on the site. I’m sure he wouldn’t mind you friending him and asking some questions. I agree with Damien, that having a chat with the team in Sydney is the best way to go. I have only just gone through the first stage and not going to have the second stage till 7 January so I can’t give much advice. But I saw Jaime recently walking and he is doing really well. Hope this helps. Cheers, Ali

    December 7, 2012 at 9:16 am #118
    Avatar of Ali France
    Ali France
    Editor

    JR – here is a video of Jaime walking about 1 month post 2nd stage…https://www.youtube.com/watch?feature=player_embedded&v=guYnjg8f-68

    December 7, 2012 at 11:51 am #119
    Avatar of JR
    JR
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    Hey Ali,  thanks for the video link–it was pretty cool!  I hope one day I won’t need sockets.

    January 8, 2013 at 8:20 am #135
    Avatar of Ali France
    Ali France
    Editor

    I had 2nd stage ILP surgery yesterday and am feeling pretty good. 2nd stage is an absolute breeze compared to the 1st stage! I haven’t yet (touch wood) had any pain in the stump, although I am still taking panadol every 4 hours – but no other pain meds. I had a look at the stoma yesterday for the first time and it looked quite neat, I had expected it to look quite scary! I’ve had very strong phantom sensations since yesterday and a little bit of phantom pain last night but nothing out of the ordinary. The team here in Sydney are simply amazing. I start physio today, so hopefully I will be up and walking in a couple of weeks!

    January 8, 2013 at 11:41 am #136
    Avatar of Aaron Waterford
    Aaron Waterford
    Subscriber

    Congratulations! Very exciting to hear. Hope all goes very well and you achieve all your goals. Look forward to progress updates. All the best.

    January 8, 2013 at 12:00 pm #137
    Avatar of Damien Allen
    Damien Allen
    Subscriber

    Hi Ali, glad to here the 2nd stage has gone well. You’ll be up and about before you know it. I should be done in Brisbane this weekend so can meet you soon down there. Take care.

     

    January 15, 2013 at 11:06 am #143
    Avatar of Ali France
    Ali France
    Editor

    So I had 2nd stage surgery last week. It went so well. I feel great and today I will be taking my first few steps. I am very excited. Here are some pics.

     

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    January 23, 2013 at 3:28 pm #148
    Avatar of Bruce Behan
    Bruce Behan
    Subscriber

    Hi Ali are you in Macquarie Uni hospital. Jackie is there now having the hip plate removed from her broben hip 12 mths ago. Good luck with the weight bearing on the loader stump.

    January 25, 2013 at 11:29 am #149
    Avatar of Ali France
    Ali France
    Editor

    Hi Bruce,

    I hope Jackie is doing well. I am actually being discharged tomorrow from the Hills Private Hospital (rehab hospital) where I have been with two other osseo patients – Miranda and Dan. What a pity I didn’t get to meet Jackie but maybe another time. I had my operations at Norwest Private, so I didn’t get to go to Macquarie. I am absolutely thrilled with my new leg. I am walking like a person with two perfectly good legs. I think Munjed had performed a wonderful miracle. I still have quite significant phantom pain but walking is the first step to a much better life. Take care. I will be back in Sydney in March for a check up but will keep in contact.

    Cheers, Ali

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